Eurordis rare diseases Europe webinar 23 April 2020Please tune into the ECRD 2020 pre-conference webinar taking place on Thursday, 23 April from 13.00 – 14.00 CET. As a precursor to this year’s ECRD, this webinar is an opportunity to hear the latest outcomes of the Rare2030 Foresight Study and understand how the study lays a foundation for policy discussions throughout each theme of the ECRD. ISINNOVA’s Andrea Ricci will present the scenario building methodology and offer a quick preview of the four RARE 2030 scenarios.

Join us and come to the ECRD best prepared to tackle discussions on the future of living with a rare disease in 2030!

We are delighted to announce the moderators and speakers as:

  • Andrea Ricci, ISINNOVA;
  • Maria Montefusco, Rare Diseases Sweden;
  • Milan Macek, Motol University Hospital and Charles University Prague and
  • Yann Le Cam, EURORDIS.

This webinar will be recorded and made available on-demand thereafter.

About Rare 2030

Rare 2030 is a two-year foresight study, which uses a participatory approach to identify the most relevant drivers of change in the field, anticipate their influence over the next decade, through developing scenarios and propose policy recommendations that lead to a better future for people living with rare diseases (RD).

*Rare 2030 is co-funded by the European Union Pilot Projects and Preparatory Actions Programme (2014- 2020), as pilot project PP-1-2-2018-Rare 2030.