In October 2019, the Rare 2030 project identified possible “wild cards”, disruptive events that are not likely to happen but which could have a high impact if they do. Epidemic illness and economic crisis were mentioned as two possibilities, but little did we imagine that both of these wild cards would significantly disrupt our societies only a few months later. The question now is: how will these dual threats affect healthcare and rare disease care, treatment, and cure?
ISINNOVA has written an article for the project setting out the consequences of the COVID 19 pandemic in four different areas – a changing geopolitical landscape, increased scientific collaboration, ICT technologies and telehealth, a new sense of collective responsibility – and highlighting the opportunities and risks that these might bring.
About Rare 2030
Rare 2030 is a two-year foresight study, which uses a participatory approach to identify the most relevant drivers of change in the field, anticipate their influence over the next decade, through developing scenarios and propose policy recommendations that lead to a better future for people living with rare diseases (RD).
*Rare 2030 is co-funded by the European Union Pilot Projects and Preparatory Actions Programme (2014- 2020), as pilot project PP-1-2-2018-Rare 2030.